Long Covid and POTS/Dysautonomia

Long Covid and POTS/Dysautonomia

Lets just get this out of the way. This is not a scholarly article. This is not medical advice, nor should it be taken as such. The internet is probably the worst place to diagnose or get information about health matters. You should always go FIRST to your doctor for medical advice and care. What this is, instead, is information about some accredited medical research and programs that might be helpful to those suffering from Long COVID. Research programs you can bring up with your doctor and see if it might be a good option.

While many infected by COVID-19 recover without seeming issue – Long Covid is something that’s increasingly being recognized as affecting a lot of people. The condition has been hard to understand because it usually consists of a whole host of strange symptoms: chest pains, tiredness, brain fog, migraines, etc. These symptoms last for months and often change for unknown reasons.

For those suffering from Long COVID – there is some hope. Congress recently approved $1.15 billion over 4 years for the NIH to research the long term consequences of COVID infection. Across the country, various research hospitals are opening long COVID centers and they are starting to get a little traction.

What they are finding so far is that the strange symptoms list also matches up with something some doctors already know about: dysautonomia. Dysautonomia is a group of possible medical conditions that are caused by problems with the autonomic nervous system. The autonomic nervous system controls a whole host of involuntary body functions like your heartbeat, breathing, digestion, and so forth. While this is all in early stages and may not be the root cause, there is some interesting research going on. John Hopkins is starting to call what they are researching POTS – postural osrthostatic tachycardia syndrome. Other centers are in various stages of setting up, taking patients, or even in active research.

If you are suffering from Long COVID, I would urge you to contact some of these new long COVID research centers and hopefully you can find some help – and help researchers and others by sharing your battle with Long COVID.

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